Organizations
www.nilmdts.org  Infant Bereavement Photography
www.BeNotAfraid.net   Stories of poor prenatal diagnosis
www.Perinatalhospice.org   Perinatal Hospice
www.briefencounters.org   Pregnancy/Infant loss support
www.carrytoterm.org   Pregnancy Support
www.fetalhope.org   Research/information on different anomolies
www.babydekar.com  Pregnancy/Infant loss support
www.oliviaraine.org  Financial Support (outside of FL)
www.poorprenataldiagnosis.com   Pregnancy Support
www.october15th.com  Infant Loss Awareness Day
www.sidelines.org/resources   Pregnancy Resources
www.nationalshare.org   Infant loss support
www.thetearsfoundation.org/page.php?id=21   Infant loss support
www.erichad.com   Waiting with Love Pregnancy Support
www.michaelsfeat.org/index.html   NICU Support
www.growingthroughaffliction.com/index.html Memory Boxes
www.sharingparents.org/index.htm   Infant Loss Support
www.connorkirbymemorial.org   Financial Assistance PA and MD
www.emptycradle.org   Infant loss support

 

Informational
http://archives.cnn.com/1999/HEALTH/women/12/23/breast.milk.angles.wmd/  Banking breastmilk

http://www.marchofdimes.com/Baby/loss_indepth.html   Loss and Grief

http://www.griefwatch.com/info/how_to_help_your_children.htm   Loss and Grief for children

 

http://www.lifeissues.net/writers/air/air_vol17no2_2002.html   Perinatal Hospice

 

http://kidshealth.org:80/parent/system/ill/nicu_caring.html    NICU

 

www.angelabode.com/holidayideas.html   Holidays after losing a baby

www.aaplog.org/aaplog-physician-directory/   Pro-life OBGYNs

 

Diagnosis
Anencephalie   www.anencephalie-info.org
Autosomal Recessive Polycystic Kidney Disease   www.arpkd.org
Congenital Diaphragmatic Hernia   www.cherubs-cdh.org
Congenital Heart Defects   www.congenitalheartdefects.com
Cystic Hygroma   www.RosieFoster.org
Holoprosencephaly   www.familiesforhope.org
Hydrocephalus   www.hydrosupport.org
Potters Syndrome   www.potterssyndrome.org
Posterior Urethral Valves   www.puvs.org and www.unlockingpuv.com
Spina Bifida   www.sbaa.org
Trisomy   www.trisomy.org and www.livingwithtrisomy13.org
Twin-to-Twin Transfusion Syndrome   www.tttsfoundation.org

 

Retail
www.castingkeepsakes.com
www.aplacetoremember.com/
www.justacloudaway.com/

 

Hospitals
http://health.usf.edu/medicine/obgyn/fetalmd/index.htm   USF Tampa Fetal Care Center

www.childrenshospital.org   Boston Children's Hospital

 

www.chop.edu   The Children's Hospital of Philadelphia

 

www.UCSFhealth.org   University of California, San Francisco Children's Hospital

 

Local Support Groups
www.griefsupportdeathofchild.org   Compassionate Friends Space Coast Chapter

 

http://www.health-first.org   Brightstar,  A Special Place for Grieving Children,  321-733-7672

 

Remembering through Sharing- Infant loss support group in Indialantic, FL. Contact: Tammy Mussler (321)698-5071
The third Tuesday of each month at: 150 Coconut Ave, Indialantic, FL, 7PM-9PM

 

Griefshare Loss of a Child group- Calvary Chapel in Melbourne, http://www.calvaryccm.com/newsevents/11-08-01/GriefShare_Loss_of_a_Child_Support_Group.aspx

 

Elizabeth Ministries- https://www.facebook.com/pages/Elizabeth-Ministry-of-Melbourne/211728362201942?fref=ts
Support for women going through various issues including miscarriages.

 

The Tears Foundation Support group: https://www.facebook.com/events/233808376757804/
The third Thursday of each month from 6-8 PM.  BeginAgain Children's Grief Center, 655 N Clyde Morris Blvd., Daytona Beach, FL 32114

 

Winnie Palmer Support Group (Orlando)-  2nd and 4th Tuesday of each month. Contact: Laura Barton, LCSW (321) 841-1048

 

Florida Hospital- H.E.A.L. (Helping Endure Infant Loss)
Seven-week series for parents experiencing miscarriage, stillbirth or infant death. Lead by a male and female licensed mental        health counselor.
        FH Barker Conference Center
        Four times each year, 7-9 p.m.
        Free but you must pre-register at 407.303.5715

 

 

Grief Counseling
Candace Cowan, M.S., LMHC     
Adult and Child Counseling and Psychiatric Center
5545 N. Wickham, Suite 110
Melbourne, FL  32940
321-779-9838 x36

Candace is a Licensed Mental Health Counselor with over 25 years experience in the counseling field. She maintains a general counseling practice addressing anxiety, depression and bereavement for older children through adulthood. Candace’s practice involves a special emphasis on maternal health, addressing reproductive challenges, pregnancy loss, and postpartum depression and adjustment.  Learning skills to cope with the fears that appear during a subsequent pregnancy after a loss are also a specialty of her practice.  Candace co-facilitates a perinatal loss support group in Brevard County for those who have experienced miscarriage, stillbirth, or infant death.

Blogs
Bring the Rain   www.audreycaroline.blogspot.com

 

He will Carry Me   www.sgirl79@blogspot.com">www.sgirl79@blogspot.com

 

The Miracle of Matthew   www.themiracleofmatthew.blogspot.com

 

Through My Mother's Eyes   www.vaydenjamesstewart.blogspot.com

 

Waiting for Happy   www.babybolte.blogspot.com

 

Books
Waiting for Gabriel, A Story of Cherishing a Baby's Brief Life   Amy Kuebelbeck

 

I'll Hold You in Heaven   Jack Hayford

 

I WIll Carry You: The Sacred Dance of Grief and Joy   Angie Smith

 

Empty Cradle, Broken Heart: Surviving the Death of Your Baby   Deborah Davis

 

A Gift of Time: Continuing Your Pregnancy When Your Baby's Life is Expected  to be Brief   Kuebelbeck, Davis

 

Threads of Hope, Pieces of Joy: A Pregnancy Loss Bible Study   Gwen Kik, Teale Fackler

 

Gift of a Lifetime   Focus on the Family  (Booklet)

 

Bittersweet Hellogoodbye: A Resource in Planning Farewell Rituals When a Baby Dies   Jane Lamb

 

Loving and Letting Go: For Parents Who Decided to Turn Away from Aggressive Medical Intervention for their Critically Ill Newborns  Deborah Davis

 

Children also Grieve:  Talking About Death and Healing   Linda Goldman

 

How to Help When Parents Grieve   Holly Fox Vellekoop

 

Resources