Organizations
  Infant Bereavement Photography
www.BeNotAfraid.net   Stories of poor prenatal diagnosis
www.Perinatalhospice.org   Perinatal Hospice
www.briefencounters.org   Pregnancy/Infant loss support
www.carrytoterm.org   Pregnancy Support
www.fetalhope.org   Research/information on different anomolies
www.babydekar.com  Pregnancy/Infant loss support
www.oliviaraine.org  Financial Support (outside of FL)
www.poorprenataldiagnosis.com   Pregnancy Support
www.october15th.com  Infant Loss Awareness Day
www.sidelines.org/resources   Pregnancy Resources
www.nationalshare.org   Infant loss support
www.thetearsfoundation.org/page.php?id=21   Infant loss support
www.erichad.com   Waiting with Love Pregnancy Support
www.michaelsfeat.org/index.html   NICU Support
www.growingthroughaffliction.com/index.html Memory Boxes
www.sharingparents.org/index.htm   Infant Loss Support
www.connorkirbymemorial.org   Financial Assistance PA and MD
www.emptycradle.org   Infant loss support

 

Informational
http://archives.cnn.com/1999/HEALTH/women/12/23/breast.milk.angles.wmd/  Banking breastmilk

http://www.marchofdimes.com/Baby/loss_indepth.html   Loss and Grief

http://www.griefwatch.com/info/how_to_help_your_children.htm   Loss and Grief for children

 

http://www.lifeissues.net/writers/air/air_vol17no2_2002.html   Perinatal Hospice

 

http://kidshealth.org:80/parent/system/ill/nicu_caring.html    NICU

 

www.angelabode.com/holidayideas.html   Holidays after losing a baby

www.aaplog.org/aaplog-physician-directory/   Pro-life OBGYNs

 

Diagnosis
Anencephalie  
Autosomal Recessive Polycystic Kidney Disease   www.arpkd.org
Congenital Diaphragmatic Hernia   www.cherubs-cdh.org
Congenital Heart Defects   www.congenitalheartdefects.com
Cystic Hygroma   www.RosieFoster.org
Holoprosencephaly   www.familiesforhope.org
Hydrocephalus   www.hydrosupport.org
Potters Syndrome   www.potterssyndrome.org
Posterior Urethral Valves   www.puvs.org and www.unlockingpuv.com
Spina Bifida   www.sbaa.org
Trisomy   www.trisomy.org and www.livingwithtrisomy13.org
Twin-to-Twin Transfusion Syndrome   www.tttsfoundation.org

 

Retail

www.aplacetoremember.com/
www.justacloudaway.com/

 

Hospitals
USF Tampa Fetal Care Center

   Boston Children's Hospital

 

   The Children's Hospital of Philadelphia

 

   University of California, San Francisco Children's Hospital

 

Local Support Groups
   Compassionate Friends Space Coast Chapter

 

   Brightstar,  A Special Place for Grieving Children,  321-733-7672

 

Remembering through Sharing- Infant loss support group in Indialantic, FL. Contact: Tammy Mussler (321)698-5071
The third Tuesday of each month at: 150 Coconut Ave, Indialantic, FL, 7PM-9PM

 

Griefshare Loss of a Child group- Calvary Chapel in Melbourne,

 

Elizabeth Ministries-
Support for women going through various issues including miscarriages.

 

The Tears Foundation Support group:
The third Thursday of each month from 6-8 PM.  BeginAgain Children's Grief Center, 655 N Clyde Morris Blvd., Daytona Beach, FL 32114

 

Winnie Palmer Support Group (Orlando)-  2nd and 4th Tuesday of each month. Contact: Laura Barton, LCSW (321) 841-1048

 

Florida Hospital- H.E.A.L. (Helping Endure Infant Loss)
Seven-week series for parents experiencing miscarriage, stillbirth or infant death. Lead by a male and female licensed mental        health counselor.
        FH Barker Conference Center
        Four times each year, 7-9 p.m.
        Free but you must pre-register at 407.303.5715

 

 

Grief Counseling
Candace Cowan, M.S., LMHC     
Adult and Child Counseling and Psychiatric Center
5545 N. Wickham, Suite 110
Melbourne, FL  32940
321-779-9838 x36

Candace is a Licensed Mental Health Counselor with over 25 years experience in the counseling field. She maintains a general counseling practice addressing anxiety, depression and bereavement for older children through adulthood. Candace’s practice involves a special emphasis on maternal health, addressing reproductive challenges, pregnancy loss, and postpartum depression and adjustment.  Learning skills to cope with the fears that appear during a subsequent pregnancy after a loss are also a specialty of her practice.  Candace co-facilitates a perinatal loss support group in Brevard County for those who have experienced miscarriage, stillbirth, or infant death.

Blogs
Bring the Rain  

 

He will Carry Me   @blogspot.com">@blogspot.com

 

The Miracle of Matthew  

 

Through My Mother's Eyes  

 

Waiting for Happy  

 

Books
Waiting for Gabriel, A Story of Cherishing a Baby's Brief Life   Amy Kuebelbeck

 

I'll Hold You in Heaven   Jack Hayford

 

I WIll Carry You: The Sacred Dance of Grief and Joy   Angie Smith

 

Empty Cradle, Broken Heart: Surviving the Death of Your Baby   Deborah Davis

 

A Gift of Time: Continuing Your Pregnancy When Your Baby's Life is Expected  to be Brief   Kuebelbeck, Davis

 

Threads of Hope, Pieces of Joy: A Pregnancy Loss Bible Study   Gwen Kik, Teale Fackler

 

Gift of a Lifetime   Focus on the Family  (Booklet)

 

Bittersweet Hellogoodbye: A Resource in Planning Farewell Rituals When a Baby Dies   Jane Lamb

 

Loving and Letting Go: For Parents Who Decided to Turn Away from Aggressive Medical Intervention for their Critically Ill Newborns  Deborah Davis

 

Children also Grieve:  Talking About Death and Healing   Linda Goldman

 

How to Help When Parents Grieve   Holly Fox Vellekoop

 

Resources